When we met with Dr. Roth afterwards he told us that Parker can hold about 40ml's in his bladder, but that the pressure started to back up into his kidneys, also called reflux. He said that his reflux was low grade,and that it usually resolves on its own. He also said that it could have been caused by too much pressure pumping in at once. The problem that he noticed was that Parker can only hold 40 ml's and that the average two year old hold about 150 ml's. I, however, think that it's impossible to expect his bladder to hold the same amount as an average two year old. After all, they have the advantage of USING their bladder for two extra years.
There are two options that they may take. One is that they will take a wait and see approach. Usually the bladder will stretch on its own post transplant. As it fills and expands it stretches. The con with this that high grade reflux can cause damage to the new kidney, so he would have to be monitored closely to make sure his doesn't get worse. The second option is to do bladder cycling before transplant. Bladder cycling basically means that they will put a catheter into his belly and to his bladder and we will flush saline into it every day to stretch it before surgery. I've talked to several "kidney moms" and none have done the cycling, so we are hoping that Parker won't have to either.
We have another fun-filled day at Children's Hospital Thursday with the GI team. Hopefully by then someone can give us answers on what's going on.